Hi Daniella,
My apologies for the delay in posting your comment, AND my reply to it…the holidays and all the fun and craziness that come from them got the better of me over the past few weeks and I have been completely absent from here for a bit. In response to your question about my constipation and tecfidera, I went off of the drug for a short bit, AND emptied out my system, fairly quickly after that. I then re-started on it, taking only one dose a day to begin with and then slowly bumping back up. I still struggle with constipation, but SO far, NOT as severely as the first time. I too was told to increase water, by both the nurse on the Tec phone line AND at my drs office. I suppose water cures all:)
I am so happy that you found my blog and that even IF my shit stories didn’t give you an answer, perhaps a few laughs. Hoping to write more, about Tecfidera and other stories soon!:) Hope you keep reading:)

Anyway, hope all is well, I am glad I found your blog. At least I know I am not alone…tell Biogen about it! 🙂

Thanks so much for the compliment, and I fully intend to keep writing. JUST way too much to say to NOT…after all there is only SO much listening that Shawn can put up with:)

Thanks Crankypants!
I feel SUPER lucky that I went from a flair-up EVERY 45-60 days to ONE in the past 3 years! And that was on NO DMD (other than VS of course!) I plan on trying to work this out with the Tecfidera, and find something that will counteract the constipation. At the moment, I have not taken it for the past four days and am actually SO happy to announce that I am shitting just fine for the moment. I actually sent Shawn a text at work yesterday that read:
ME: Another humungous poop today!
S: I am so proud of you, you are such a big girl
ME:sorry, just so fucking proud of my dump!
S: And I am too. Can I share this with Jer?
ME: Sure after all I am SURE I will blog about it! Bet when we first started dating and you thought I was “fancy” you never expected to be getting a text like that from ME:)
S: NO, can’t say that I did, but that is why I love you. Keep me on my toes:) Your shit stinks just like everyone else’s and we both know it:)

I stepped away and didn’t realize I didn’t finish my thought from my prior post… I have ups and downs and still getting used to my new bff. I’m still a few steps away of understanding and fully accepting the new me.

By the way, my sis in London told me about a new drug in the UK called Benztropine. Keep hope alive!!!
http://www.scripps.edu/news/press/2013/20131009lairson.html

I am better now after increasing fiber in my smoothies, using aloe vera juice to blend, snacking on watermelon and I think what really did the trick was Seven Forests Rhubarb 17. What a blessing and a relief.

I have no doubts it was the Tecfidera. I definitely don’t think you should stop because there are natural remedies out there that can help. Fixing one thing (MS) means breaking something else- I think that goes with any medication.

CONGRATS on your new gig 🙂 I can imagine that it must be such a good feeling to be ready to speak and also getting the opportunity to do so. I have ups and do

I love your blog so keep on doing what you’re doing.

Good luck…

Thanks Mette! And I DID think of you and the Biogen Idec blog! We are now “partners in crime”!:). Really hoping the speaking thing will still be available no matter what I decide I have to do!:)

Webster,
Thanks for reading and for taking the time to comment. Yea I did go to dr first and they are the ones that suggested I call the hotline. Which is ironic since the hotline then suggested I call my dr:). Around and around, where I poop, nobody knows!
You mention Copaxone and although we HAVE talked about it, it seems it hasn’t been something that dr ever really considered. Don’t know why so that might be a good conversation to have. Thanks!