Comments on: Not an “Oh Fuck” moment with MS….and update on Biogen -Tecfidera

By: Meg

Meg — Wed, 28 Mar 2018 02:37:40 +0000

In reply to Shirley. Hey Shirley! Thanks for stopping by and sorry to hear about the gas:(. Hope you stick around and read more of my ramblings;)

By: Shirley

Shirley — Wed, 28 Mar 2018 02:21:56 +0000

So cool to read these because it makes me feel that I’m not alone. Been on tec since July (after 7 years going to doctors about weird things happening to me)..feeling blessed that no major side effects but tryin to change diet because experiencing bad gas just made connection tonight it’s the pills omg. Oh and dripping water I get it Holy glad I found this site

By: Disease & Divorce: Did MS End My Marriage – BBHwithMS

Disease & Divorce: Did MS End My Marriage – BBHwithMS — Wed, 03 Jan 2018 18:41:15 +0000

[…] that I was not living out being the person I was meant to be. Being able to embrace the fact that having MS was NOT an “Oh Fuck moment” is what allowed me to start on my journey to living a life that is about ME and those people in my […]

By: Meg

Meg — Tue, 17 Jan 2017 03:54:01 +0000

In reply to Tina. Good luck and hoping it works for you !:)

By: Tina

Tina — Tue, 17 Jan 2017 03:51:34 +0000

I have experienced the dripping water sensation many times. I’m on day 4 taking Tecfidera. I’ve made the mistake thinking oatmeal was a good breakfast. Not so much. My poor Gracie (fur baby) won’t sit on my lap anymore bc of the gas. I’m a little nervous about the switch to full strength but what can we do but keep moving forward. Thank you for sharing so openly and with humor.

By: Meg

Meg — Mon, 12 Dec 2016 21:53:16 +0000

In reply to Val.

Val,

Ha…pretty sure there isn’t a textbook…how could there be? Unless it is a book about trying to learn to live with totally random crap that happens whenever the fuck IT wants to happen:)
So glad I made you laugh:) And if you haven’t done so already, try and get a cane that rocks your personality. My first was Pinky (pink per Piper’s request) but amassed quite a collection over the next few years. Think my favorite was the camo one – Like I was ever going to be able to “blend” in and NOT be noticed:)

By: Val

Val — Mon, 12 Dec 2016 21:33:33 +0000

Thank you so much for sharing your story! It has been almost 5 months since my first “flare” and my neurologist says this will pass quickly…one day I will wake up and be perfectly fine again – yeah well I had to use a cane yesterday for a shopping trip with my family (huge issue for me). It is encouraging to know that there are other that don’t follow whatever the textbook path this disease takes…is there a textbook for this? You make me laugh and I thank you so much for that!

By: Meg

Meg — Thu, 13 Mar 2014 06:44:10 +0000

In reply to Stephanie wolff. Thanks so much for sharing! Peanut butter is not one that I had thought of when trying to come up with small and quick bites to grab in the morning before taking! PERFECT! Will give it a shot this week.

By: Stephanie wolff

Stephanie wolff — Mon, 10 Mar 2014 05:07:12 +0000

I take tecfidera with a cup of yogurt, or tablespoon of peanut butter, or 1/2 avocado but never on an empty stomach. If I did I’d have to bring my dog everywhere and blame my gas on her. Beano or Gasx is a huge help too!

By: Meg

Meg — Mon, 01 Jul 2013 16:18:57 +0000

HA! I had my pair of undies that I crammed into a pocket of my purse the other day, while shopping. Was in the dressing room, and realized that I had managed to drop a little “present” on the floor. Well I couldn’t very well LEAVE it there….but had nothing to pick it up with or put it in…..hhhhmmmmmm think Meg, think! UNDERWEAR! So proceeded to take off the pair I had on, used it to make sure my ass was clean with a quick wipe (but fortuanately for me, it was a “text-book turd”) and scooped up my little treasure. Tucked it into a pocket in the purse, and went about my day, knowing I was going “camando” AND had lost my shit:)
AND there is another shit story that I have been dying to tell…but had to wait a bit, for reason that MAY become obvious when I do write it:)

Thanks SO much for your words of encouragement. It can kinda be a bit scarrey to be SO different than many others -meaning you just naturally find the reason to laugh, and then have this uncontrollable urge to share no matter HOW embarassing or gross the story is. It is awesome to hear that I am NOT alone! Please touch back in again!
Cheers!