Comments on: Multiple Sclerosis & Temperature Sensitivity

By: Meg

Meg — Wed, 27 Sep 2017 03:45:46 +0000

Thanks so much Sue! It is always so amazing to hear that my stories actually help others (as opposed to being just entertainment:).

Cheers!

Meg

By: Sue Harrison

Sue Harrison — Wed, 27 Sep 2017 03:01:30 +0000

Wow. I just learned alot! I didn’t know it was an MS thing! I’ve had problems with temperatures for a while now. Maybe a year. I can be freezing and my body feels hot to the touch or I’ll be flushed and ‘healthy’ looking. I’m usually very pale. Thank you so much for sharing your story of your life and experience with this M.ore S. – – -. Pardon my language. I’m going to follow you regularly. I learned so much and I used to be an OTR! Thanks again and God bless you!!!

By: Meg

Meg — Sat, 23 Sep 2017 12:42:28 +0000

In reply to dinosaursdonkeysandms. Ears- that's a new one. Pretty sure there isn't a body part that is free from the MS:)

By: dinosaursdonkeysandms

dinosaursdonkeysandms — Sat, 23 Sep 2017 10:24:50 +0000

The bubble idea sounds perfect! For some reason with me with the cold, I’ll think ‘my ears feel cold’ and then the MS goes nutty on me! xxx

By: Meg

Meg — Fri, 22 Sep 2017 18:50:30 +0000

In reply to tresswann.

HAHAHA! I’m sure “tree guy” was happy to lend a hand:) Thanks so much for sharing! It’s all so damn weird, confusing and annoying and it really IS so hard to try and explain it to anyone that doesn’t live with it:)

Cheers,
Meg

By: tresswann

tresswann — Fri, 22 Sep 2017 18:40:25 +0000

The heat thing destroys me. My normal ways of comforting myself were to take a hot bubble bath, go to the beach (my happy place) and walk. For ages the bath was OK. About 5 years ago, I literally collapsed on the beach in Montauk. We discovered that I had to be careful in the subway if it was over 85 outside, I literally lost the ability to walk. Forget walking to think things through. Last year I noticed walking from the handicapped spot in the parking lot or walking into the library which has an incredibly small lot in sun and heat DESTROYED me. Early this summer, while I was still working, I was teased abot La Dolce Vita as I would leave the office in my glamourous Italian straw hat and Audrey Hepburnesque sunglasses. Cold has never agreed with me, child of a tropical mother. I have always had cold feet. The challenge for me with cold is I can’t wear boots due to the spectral leg. If I was commuting, I couldn’t take the chance on the railroad being disrupted. Snow? A coating disrupts my balance.
Oh, and for me, melatonin for heat does zip.
My new wrinke? If it’s windy I can’t go out by myself. If the walking stick blows, I am done for. Luckily, at my last job, I worked near a guy who was literally 6’7 and built like a tree

By: Meg

Meg — Fri, 22 Sep 2017 18:29:32 +0000

In reply to laura bruno lilly.

HAHAHA! I Totally get it! And often times feel as if I should follow a like up with a similar message. Feels pretty shitty to be “liking” someone else’s crap:)

I get it – and thanks for “liking” me!!!!:)

Cheers!
Meg

By: laura bruno lilly

laura bruno lilly — Fri, 22 Sep 2017 18:26:38 +0000

Note: I ‘liked’ this post…not cuz I ‘like’ what you’re going through, but ‘like’ your sharing and telling it like it is…ya know?
Take care.

By: Meg

Meg — Fri, 22 Sep 2017 18:20:56 +0000

In reply to Janet Robertson.

Hey Janet…
Huh…I learn something new every day:) I’ll have to google it – although I don’t really NEED to read about it- I’ve lived it:)

Thanks so much for sharing!

Cheers!
Meg

By: Janet Robertson

Janet Robertson — Fri, 22 Sep 2017 18:16:49 +0000

I have had this problem for years. This is actually called temperature disregulation. I like this term because it covers all the bases when people don’t get it.