YES – I experience drop foot – in my right foot – but these days ONLY when I am extremely tired and have pushed my body and my legs to there absolute maximum – which I have to confess I do more often than one might expect:)

So excited to hear back from you! I have been on Copaxone since the beginning. I am a believer of moving as much and as often as possible. I’m curious if your mobility issues included over coming drop foot? That is my issue. I continue to stretch and flex.

Hi Gloria!
Thank you for buying my book and for taking the time to reach out to me. I recently posted a video on my social media of me standing and balancing on one foot….something that two years ago I said I would NEVER be able to do. And yet I am now doing it every day as part of my stretching and yoga practice. This whole experience of pulling out of the downward spiral I was in because of the pain and getting my life and my body back has been EXTREMELY humbling. I KNOW – first hand – what it is like to feel yourself slipping away and I want to reach out and make it better for anyone that is experiencing it because it SUCKS!
I know you mention that you exercise but my advice would be to start there – find things you CAN do, and do them. Then find things you can’t do – small things to begin with, and work on mastering them so that they can then be added to the list of things you can do. I started out with getting off the couch for 20 minutes every two hours to stretch on the floor. Granted I was still stationary for the most part, BUT it was something. It may sound trivial, but I am now convinced more than EVER that our number one defense against this disease is movement.

I would also suggest that you reach out to MS Workouts – the people behind this program are fantastic – they GET our disease and they are putting together great resources for people of all varying abilities.

Curious, are you on a DMD or have you been?

Cheers!
Meg

Hello Meg. Am really happy I found your blog and look forward to purchasing the book. Like you, I was diagnosed in 2007. My frustration is my mobility. I constantly read how some folks have been able to overcome this. My mobility has progressively worsened since the beginning. I have tried braces, electric devices, etc. I excersize with my limited mobility and fatigue issues. Any advice?

I believe it will, but big changes like that don’t happen overnight and certainly when it is going to take big time money away from the pharmaceutical companies 🙂

xoxo

Meg

You are very welcome Meg! I really wish Cannabis was legal in all 50 states because I do hear it is SO helpful especially for pain. Maybe someday it will happen!

Thanks so much Alyssa and right back at you!!!

XOXO

Meg

I have been looking into it – and will certainly let folks know when/if it happens!

Miitch’s audio version is excellent too. Sometimes reading for the MS er can be a challenge,(I know it is for me) at least the Kindle version can give one the option of Robo voice but an audiobook is better.I hope your book goes the audible route as well.