Comments on: What I Hate Most About Having Multiple Sclerosis

By: Meg

Meg — Sun, 31 Dec 2017 23:35:13 +0000

In reply to Elisa Espinosa. I think so many of us can understand the tired part. It is constant and relentless and just doesn’t stop. Thanks so much for sharing and venting. We all need to do that from time to time:)

By: Elisa Espinosa

Elisa Espinosa — Sun, 31 Dec 2017 23:31:43 +0000

I am just so so tired of feeling as a victim of this damn MS
I actually have a superior I Q,
Earned a full scholarship , never paid a dime to study
By 23 I have my degree
Applied for a job I wanted and got it
In a year I got promoted
Some were jelous I did but I learned to easily and quickly . I did not want to upset any one
I just did my job and learned easily
But any way
Then I traveled to Europe, but my house and other positive things
Then at 29 ended up in the ER
IN 10 DAYS I was told “you have MS”
Kept on an one and 27 years later
Here I am . My life in pieces
I pitty myself and I miss me
The intelligent beautiful woman I was and I am tired of living in daily pain and the stupid MRIs
I am tired , very tired

By: Meg

Meg — Wed, 19 Oct 2016 00:40:17 +0000

In reply to Greg Power.

Thanks for stopping by and sharing! I think they many of us have those damn worrying & doubting thoughts. It is better for me if I can try and stay busy (even if sedentary on bad leg days) because they does seem to shut the voice up a bit:)

Cheers!
Meg

By: Greg Power

Greg Power — Wed, 19 Oct 2016 00:18:51 +0000

Tx u for articulating that. I feel the same. There are the few odd days that my fear worry/obsessing about.What’s next ..when or how it will hit me?….outweigh/& areworse, all consuming than the MS itself that day. Rancid disease I wish u and all health.

By: Meg

Meg — Tue, 18 Oct 2016 15:49:52 +0000

In reply to Jamie. Thanks Jamie! Just read your post on "bladder issues" and it reminded me of the post I wrote 3 years ago Damn it! IF I Had Only Known: Adult Diapers Done Right! Good times:)

By: Jamie

Jamie — Mon, 17 Oct 2016 23:59:04 +0000

I agree I think I had a similar post but I liked yours better. Fuck you MS. ☺️

By: Meg

Meg — Mon, 17 Oct 2016 23:11:47 +0000

In reply to Suze Hearty.

🙂 Yup. I do find myself frequently repeating my first docs words of wisdom… this is NOT an OH FUCK moment – it’s an OH DAMN moment in life. I realize that others may have their own opinion of this but it really helped set me straight from the get go to appreciate what I DO have and try and not miss what I don’t:)

Cheers!
Meg

By: Suze Hearty

Suze Hearty — Mon, 17 Oct 2016 22:24:27 +0000

Love this. Well said. Like I told my doctor I usually forget until I try and stand and walk.
I am trying to hold onto anything is possible!