Comments on: Happy 4th of July!!! Tecfidera Update…..still working

By: Meg

Meg — Sun, 07 Jul 2013 20:22:39 +0000

True that if it is working, maybe don’t mess with it….BUT a pill twice a day as opposed to the shot daily does sound better, at least to me. I did the shots, (Avonex) for about a year and NEVER got used to it. It would take a FEW glasses of wine each week to get up the nerve and then sicker than sick for 24 hours after, EVERY week. Kinda sucked. Let me know what you end up doing.
Cheers,
Meg

By: Meg

Meg — Sun, 07 Jul 2013 20:20:56 +0000

In reply to Mette.

Thanks Mette!
It WAS a fantastic holiday! And can’t wait to eat the salmon. Shawn is smoking it today!

Cheers!

By: Ms. CrankyPants

Ms. CrankyPants — Sat, 06 Jul 2013 11:15:56 +0000

So glad to hear it’s working! I’m supposed to see my neuro this month; will have to ask him about it. He’ll probably say since the Copaxone is working w/o problems, I should stick with it for now. Makes sense I guess. I already got kicked off using Rebif (I developed antibodies), so I guess I should let one drug do all it can for me before trying something new. Would love to not be giving myself shots every damn night, though!

By: Mette

Mette — Sat, 06 Jul 2013 06:04:35 +0000

So glad to hear the meds are working for you:) I’m in a little dilemma as I have the JC virus (as do most people) but when you get Tysabri it can be a very bad combo:(
But Tysabri works soooo well for me so I’ll be sad to change meds but I don’t want to have PML which is a possibility. I’m beeing kept a close eye on by the doctors so I should be pretty safe but still.

Sounds like a fantastic weekend and well done catching the fish:)

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