Comments on: Coming Out…How the World Found Out I was “Damaged Goods”

By: Meg

Meg — Thu, 14 Apr 2016 17:24:04 +0000

In reply to sua\san.

Wow – you have a lot on your plate! Thanks for sharing. I am always curious about the question of IF people have “come out” and if YES then how.

Cheers!
Meg (aka BBH)

By: sua\san

sua\san — Thu, 14 Apr 2016 00:28:28 +0000

My husband and I call it MC for my condition to say the word gives it power. I have never really come out about it. My stepsons know. Bless his heart, the eldest drove me to my spinal tap when he was 19, My husband is an alcoholic, sometimes in recovery, sometimes not. For my initial tests and diagnosis he was either passed out in the car or doctor’s lobby. I was diagnosed with if it’s nothing else it has to be this in early 2009. 2010 he was out of it and had cancer op. 2012 he was either in jail or rehab. I lost my job end of 2015 and he was off again. He can’t drive so it’s all on me and he doesn’t work, It’s all on me. He keeps the house immaculate. I am so not a domestic goddess; does all the laundry, ties my shoes everyday and helps me in and out of the bath. I worked for a large institution and it became very obvious that something was wrong. Typical reaction: OMG” Some people guessed but I just looked at them. I did at the end have to put it in writing as I was having issues with my necessary accomodation. When my husband saw me referred to that way in print; he put his head on the table and sobbed.

By: Suzanne

Suzanne — Sun, 03 Apr 2016 00:32:12 +0000

Thanks for share. My brother had progressive m s. His wife moved with him to California from NY. She just left him in the care of an aide. He was very, very disabled. Two years later, I got optic neuritis. The neurologist wasn’t sure about the diagnosis (before MRIS). Luckily my 31 year husband just cried with me and told me that he would never leave. That was 33 years ago. I need him every day. He moves my commode, helps me shower, pulls up my pants if I can’t. It’s not easy…for either of us. It’s til death do us part.

By: Meg

Meg — Fri, 27 Nov 2015 21:28:17 +0000

HA…like the nickname. Unfortunately MY “wusband” seemed to think it was my fault that I “got” MS….as if I just checked off the wrong box on my application for life:) I have absolutely NO doubt that reduction in stress and increase in happiness can be attributed to my improvement in health and condition!:) Finding someone that is truly my best friend that loves me for me is AWESOME!
Thanks for stopping by my blog and taking the time to share a bit about your story! Heading over to yours to have a read!:)

Cheers,
MEG

By: Meg

Meg — Fri, 13 Sep 2013 00:02:26 +0000

In reply to Kerri. SO true Kerri! Thank goodness it is so frequently referred to as MS, otherwise I am NOT sure that ANYONE would know what it is I have, because I really can NOT say it!:) Cheers!

By: Kerri

Kerri — Thu, 12 Sep 2013 10:48:09 +0000

Ironic, isn’t it, that they discover a disease that includes speech problems as a symptom and labeled it with a name nobody can easily say, especially those that have it!

By: Meg

Meg — Tue, 10 Sep 2013 21:36:51 +0000

In reply to DeeDee.

DeeDee,
I am so sorry to hear that it sucks so much right now and I can imagine how different your life is, now that you are not a practicing nurse. I am NOT a psychologist, and to be honest, your message scared me a bit, because I don’t want to mess up what I say to you, because even though I don’t know you, you already matter to me. This may sound cheesy and corny and fake BUT… you are going to be ok and things will get better. I BELIEVE that! It happened for me, and so it can for you as well. I don’t know what all you experience (symptoms etc) but I do know, that if you are feeling that down and can’t feel the love of your husband and children as enough to help pull you through, maybe you should find someone to talk with. A very close friend of mine wrote in an email once, “even the strong sometimes ask for help, and it makes them stronger.” I’m not even sure he got the quote right (would be SO like him to fuck that up) BUT it hit home, because I WAS trying to keep it all in, show the world I was strong enough and could handle anything. BUT there really is NO point to that, it leads to sadness and loneliness. I printed that quote out and taped it to my mirror (that is the first and only time I have done something like that) but it helped, it was a gentle reminder to ask when I needed it. Talk with your husband. Let your girls know how you are feeling (the older ones) and use your family for what they are there for, to love and support you.
Good luck and keep in touch!!! PLEASE:)

By: DeeDee

DeeDee — Tue, 10 Sep 2013 18:43:44 +0000

This whole MS thing has been very awful in my life. I can no longer work as a RN and I’m only 40. Now that I no longer work my family doesn’t respect me, at this point I can not see any silver lining! 21 yrs with my husband, 3 girls 18,14,and 6. Sadly, I’m ready to go and not sure how much more I can tolerate. Thanks for the posts all!

By: Meg

Meg — Wed, 04 Sep 2013 20:12:45 +0000

In reply to Estizer A. Smith. Estizer, All I have to say is TRUE DAT!!!!:) Thanks so much for taking the time to read, and then comment! Your support is greatly appreciated!

By: Estizer A. Smith

Estizer A. Smith — Wed, 04 Sep 2013 19:14:31 +0000

In reply to Meg.

Hi Meg, I have read every word of this heart breaking post and all of the comments 🙁 Everything happens for a reason…I do believe that! Your EX husband was a super jerk. But think, if it wasn’t for your MS you would not have found Shawn 🙂
Frolic well,
Estizer